@article{Callard_F-2021_14210,
title = {How and why patients made long Covid},
author = {Callard, F. and Perego, E.},
month = {jan},
year = {2021},
abstract = {Patients collectively made Long Covid – and cognate term ‘long-haul Covid’ – in the first months of the pandemic. Patients, many with initially ‘mild’ illness, used various kinds of evidence and advocacy to demonstrate a longer, more complex course of illness than laid out in initial reports from Wuhan. Long Covid has a strong claim to be the first illness created through patients finding one another on social media: it moved from patients, through various media, to formal clinical and policy channels in just a few months. This initial mapping of Long Covid – by two patients with this illness – focuses on actors in the UK and USA and demonstrates how patients marshalled epistemic authority. Patient knowledge needs to be incorporated into how COVID-19 is conceptualised, researched, and treated.},
volume = {268},
journal = {Social Science & Medicine},
publisher = {Elsevier},
url = {http://dx.doi.org/10.1016/j.socscimed.2020.113426},
}
