TY - JOUR
AU - Simpson, Robert
AU - Szigeti, Zara
AU - Sheppard, Christine L.
AU - Minezes, Jacqueline
AU - Hitzig, Sander L.
AU - Mayo, Amanda L.
AU - Robinson, Lawrence
AU - Lung, Maria
AU - Wasilewski, Marina B.
PY - 2022
DA - November
TI - The experiences of patients, family caregivers, healthcare providers, and health service leaders with compassionate care following hospitalization with COVID-19: a qualitative study
JO - Disability and Rehabilitation
DO - https://doi.org/10.1080/09638288.2022.2113564
AB - Purpose: This study explored the experiences of patients, caregivers, healthcare providers, and health service leaders of compassion in the care of people hospitalized with COVID-19. Materials and methods: This study is a secondary analysis of qualitative data deriving from primary research data on recommendations for healthcare organizations providing care to people hospitalized with COVID-19. Participants comprised patients with COVID-19 (n = 10), family caregivers (n = 5) and HCPs in COVID-19 units (n = 12). Primary research data were analyzed deductively under the “lens” of compassion, as defined by Goetz. Results: Four interacting themes were found: (1) COVID-19 – to care or not to care? The importance of feeling safe, (2) A lonely illness – suffering in isolation with COVID-19, (3) Compassionate care for people with COVID-19 across the hospital continuum, and (4) Sustaining compassionate care for people hospitalized with COVID-19 – healthcare provider compassion fatigue and burnout. Conclusions: Compassionate care is not a given for people hospitalized with COVID-19. Healthcare providers must feel safe to provide care before responding compassionately. People hospitalized with COVID-19 experience additional suffering through isolation. Compassionate care for people hospitalized with COVID-19 is more readily identifiable in the rehabilitation setting. However, compassion fatigue and burnout in this context threaten healthcare sustainability.
PB - Taylor and Francis
UR - https://eprints.gla.ac.uk/282633/
KW - Coronavirus (COVID-19)
KW - Hospital care
ER