TY - JOUR
AU - Callard, Felicity
AU - Perego, Elisa
PY - 2021
DA - January
TI - How and why patients made long Covid
JO - Social Science & Medicine
VL - 268
DO - http://dx.doi.org/10.1016/j.socscimed.2020.113426
AB - Patients collectively made Long Covid – and cognate term ‘long-haul Covid’ – in the first months of the pandemic. Patients, many with initially ‘mild’ illness, used various kinds of evidence and advocacy to demonstrate a longer, more complex course of illness than laid out in initial reports from Wuhan. Long Covid has a strong claim to be the first illness created through patients finding one another on social media: it moved from patients, through various media, to formal clinical and policy channels in just a few months. This initial mapping of Long Covid – by two patients with this illness – focuses on actors in the UK and USA and demonstrates how patients marshalled epistemic authority. Patient knowledge needs to be incorporated into how COVID-19 is conceptualised, researched, and treated.
PB - Elsevier
UR - http://eprints.gla.ac.uk/223877/
KW - Coronavirus (COVID-19)
ER