TY - JOUR
AU - Brackel, Caroline L.H.
AU - Noij, Lieke C.E.
AU - Vijverberg, Susanne J.H.
AU - Legghe, Camille L.
AU - Maitland-van der Zee, Anke H.
AU - van Goudoever, Johannes B.
AU - Buonsenso, Danilo
AU - Munblit, Daniel
AU - Sigfrid, Louise
AU - McFarland, Sammie
AU - Anmyr, Lena
AU - Ashkenazi-Hoffnung, Liat
AU - Bellinat, Ana P.N.
AU - Dias, Nathália L.S.
AU - Edwards, Amy
AU - Fashina, Tomini
AU - Juraški, Romana Gjergja
AU - Gonçalves, Ana L.N.
AU - Hansted, Edita
AU - Herczeg, Vivien
AU - Hertting, Olof
AU - Jankauskaite, Lina N.
AU - Kaswandani, Nastiti
AU - Kevalas, Rimantas
AU - Krivácsy, Péter
AU - Lorenz, Michael
AU - Malone, Laura A.
AU - McVoy, Molly
AU - Miller, David W.
AU - Morrow, Amanda K.
AU - Nugawela, Manjula D.
AU - Oliveira, Carlos R.
AU - Oliveira, Pablo R.S.
AU - Osmanov, Ismael M.
AU - Overmars, Isabella B.
AU - Paintsil, Elijah
AU - Pinto Pereira, Snehal
AU - Prawira, Yogi
AU - Dwi Putri, Nina
AU - Ramos, Regina C.F.
AU - Rasche, Marius
AU - Ryd-Rinder, Malin
AU - De Rose, Christina
AU - Samitova, Elmira
AU - Savić Jovanović, Tajana
AU - Say, Daniela
AU - Scott, Janet T.
AU - Shachar-Lavie, Iris
AU - Shafran, Ros
AU - Shmueli, Einat
AU - Snipaitiene, Ausra
AU - Stephenson, Terence
AU - Ténai, Nikolett
AU - Tosif, Shidan
AU - Turkalj, Mirjana
AU - Valentini, Piero
AU - Vasconcelos, Luydson R.S.
AU - Villard, Li
AU - Vilser, Daniel
AU - Hashimoto, Simone
AU - Terheggen-Lagro, Suzanne W.J.
PY - 2024
DA - January
TI - International care programs for Pediatric Post-COVID Condition (Long COVID) and the way forward
JO - Pediatric Research
DO - https://doi.org/10.1038/s41390-023-03015-0
AB - Background: Pediatric Post-COVID-Condition (PPCC) clinics treat children despite limited scientific substantiation. By exploring real-life management of children diagnosed with PPCC, the International Post-COVID-Condition in Children Collaboration (IP4C) aimed to provide guidance for future PPCC care. Methods: We performed a cross-sectional international, multicenter study on used PPCC definitions; the organization of PPCC care programs and patients characteristics. We compared aggregated data from PPCC cohorts and identified priorities to improve PPCC care. Results: Ten PPCC care programs and six COVID-19 follow-up research cohorts participated. Aggregated data from 584 PPCC patients was analyzed. The most common symptoms included fatigue (71%), headache (55%), concentration difficulties (53%), and brain fog (48%). Severe limitations in daily life were reported in 31% of patients. Most PPCC care programs organized in-person visits with multidisciplinary teams. Diagnostic testing for respiratory and cardiac morbidity was most frequently performed and seldom abnormal. Treatment was often limited to physical therapy and psychological support. Conclusions: We found substantial heterogeneity in both the diagnostics and management of PPCC, possibly explained by scarce scientific evidence and lack of standardized care. We present a list of components which future guidelines should address, and outline priorities concerning PPCC care pathways, research and international collaboration.
PB - Springer Nature
UR - https://eprints.gla.ac.uk/315792/
KW - Coronavirus (COVID-19)
KW - Children, young people and families
ER