PHS FOI 2025-002173
- Date of request
- 09 July 2025
- Date of response
- 05 August 2025
- FOI request ID
- PHS FOI 2025-002173
- Conditions and diseases
Request
“Please can you provide statistical information from The Welsh Cancer Intelligence and Surveillance Unit (WCISU) about diagnosis of clear cell adenocarcinoma (also known as clear cell carcinoma, CCA or CCAC) of the reproductive organs in women. I would like to know:
How many women were diagnosed with the above cancer, from when the first time this type of cancer was recorded, broken down by diagnoses per year.
How many women died from the above cancer, from when the first time this type of cancer was recorded, broken down by diagnoses per year.
Please can you include the number of cases that were aged up to and including 30 years when they received a diagnosis and the number of cases that were aged 31 years or over when they received the diagnosis.
Please include whether there is any reference to DES exposure. DES is also known as Stilbestrol, Stilboestrol or Diethylstilboestrol. As this type of cancer is rare, and the numbers relatively low, I trust that this request will be met within the time constraints.”