Abstract

Introduction: The current study explored longitudinally whether child behaviours that challenge and caregiver coping strategies was associated with psychological distress in caregivers of children with and without intellectual disability during and after lockdown.

Method: An online survey was completed by caregivers who had children with and without intellectual disability during Time Period 1 (T1; August-December 2021, n = 171) and then again during Time Period 2 (T2; January-March 2022, n = 109).

Results: Child behaviours that challenge and caregiver psychological distress reduced in T2 compared to T1. Child behaviours that challenge, emotion focused coping and avoidant coping was associated distress at both time points in caregivers of children with and without intellectual disabilities.

Conclusions: The study shows that both child behaviours that challenge and caregiver psychological distress reduced as lockdown ended. However, caregiver coping strategies may have contributed to psychological distress, which has implications for interventions and support for caregivers.

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Cite as

Gillespie-Smith, K., Goodall, K., McConachie, D., Van herwegen, J., Crawford, H., Ballantyne, C., Richards, C., Gallagher-Mitchell, T., Moss, J., Khawam, G., Outhwaite, L., Marriott, E., Steindorsdottir, F. & Christie, H. 2024, 'A longitudinal study looking at the impact of COVID-19 restrictions and transitions on psychological distress in caregivers of children with Intellectual Disabilities in the UK', JCPP Advances. https://uws.pure.elsevier.com/en/publications/8238233b-f182-4419-8ee2-3facd8275b50

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Last updated: 07 June 2024
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