About this release

This release by Public Health Scotland (PHS) reports on the Scottish Government’s Local Delivery Plan (LDP) standard that everyone newly diagnosed with dementia will be offered a minimum of one year’s post-diagnostic support, coordinated by an appropriately trained Link Worker, including the building of a person-centred support plan.

Performance is reported in two parts:

  1. The percentage of people estimated to be newly diagnosed with dementia who were referred for post-diagnostic support.
  2. The percentage of people referred who received a minimum of one year’s support coordinated by a link worker, including the building of a person-centred support plan.

This report presents finalised figures to 2018/19 and provisional figures for 2019/20 which are subject to some service users completing their support.

Main points

  • There were 8,144 people diagnosed and referred for dementia post-diagnostic support in 2019/20, compared to 8,288 in 2018/19.
  • Of those referred in 2019/20 for post-diagnostic support, 81.3% received a minimum of one year’s support. In 2018/19, the percentage was 74.9%.
Image caption Percentage of referrals who received a minimum of one year’s post-diagnostic support by NHS board; 2019/20
  1. Figures for 2019/20 are provisional subject to all service users completing their support.
  2. 2019/20 figures do not include Aberdeen City due to a change during 2019 to the PDS service provided by Aberdeen City and has resulted in data quality issues. See background for further information.
  • In Scotland, 42.9% of those people estimated to be newly diagnosed with dementia in 2019/20 were referred for post-diagnostic support, compared to 44.8% in 2018/19.

Background

The Scottish Government published their third national dementia strategy in 2017. This included the commitment to extend and embed dementia PDS. In order to effectively monitor the delivery of PDS a national local delivery plan (LDP) standard (external website) was introduced for all people newly diagnosed with dementia to receive a minimum of one year’s PDS.

NHS Boards provide quarterly data submissions to PHS, in line with data definitions effective 1 April 2019, on individuals diagnosed with dementia and referred for post-diagnostic support within their local areas. This dataset forms the basis of the LDP standard calculation and data quality checks are undertaken by PHS on the data submitted. At Scotland level for 2019/20, 6.4% of records have one or more error.

The figures presented for 2019/20 include the total number of people referred to PDS across all partnership areas however due to data quality issues Aberdeen City data is not included in the measurement figures for the LDP standard as it is not possible to accurately measure these referrals against the standard.

Part of the LDP standard calculation requires the number of referrals for PDS to be compared against an estimated number of newly diagnosed dementia cases each year. Health Board level estimates of people newly diagnosed with dementia (incidence) used for this calculation are from the paper 'Estimated and Projected Diagnosis Rates for Dementia in Scotland 2014-2020 (external website)' published by the Scottish Government in 2016.

Further information

For further information, please see the Dementia Post-Diagnostic Support (external website) web page.

For information on the Dementia Benchmarking toolkit, please see the Dementia Bookmarking toolkit publication. For related topics, please see the mental health (external website) and health and social community care (external website) web pages.

The next release of this publication will be in March 2023.

General enquiries

If you have an enquiry relating to this publication, please email phs.dementiapds@phs.scot.

Media enquiries

If you have a media enquiry relating to this publication, please contact the Communications and Engagement team.

Requesting other formats and reporting issues

If you require publications or documents in other formats, please email phs.otherformats@phs.scot.

To report any issues with a publication, please email phs.generalpublications@phs.scot.

Older versions of this publication

Versions of this publication released before 16 March 2020 may be found on the Data and Intelligence, Health Protection Scotland or Improving Health websites.

Last updated: 13 June 2022
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