- Published
- 01 January 2021
- Journal article
How and why patients made long Covid
- Authors
- Source
- Social Science & Medicine
Abstract
Patients collectively made Long Covid – and cognate term ‘long-haul Covid’ – in the first months of the pandemic. Patients, many with initially ‘mild’ illness, used various kinds of evidence and advocacy to demonstrate a longer, more complex course of illness than laid out in initial reports from Wuhan. Long Covid has a strong claim to be the first illness created through patients finding one another on social media: it moved from patients, through various media, to formal clinical and policy channels in just a few months. This initial mapping of Long Covid – by two patients with this illness – focuses on actors in the UK and USA and demonstrates how patients marshalled epistemic authority. Patient knowledge needs to be incorporated into how COVID-19 is conceptualised, researched, and treated.
Rights
This is an open access article distributed under the terms of the Creative Commons CC-BY license, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. You are not required to obtain permission to reuse this article. cc_by_4
Cite as
Callard, F. & Perego, E. 2021, 'How and why patients made long Covid', Social Science & Medicine, 268, article no: 113426. http://dx.doi.org/10.1016/j.socscimed.2020.113426
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- Repository URI
- http://eprints.gla.ac.uk/223877/