Request

"I am writing to request the following information under the Freedom of Information Act 2000.

Please provide the aggregated data per:    

  • Tertiary Neurology Centre
  • Tertiary Paediatric Neurology Centre
  • Secondary Neurology Centre
  • Regional Adult Neurology Centre
  • Secondary Adult Neurology Centre

Two periods should be considered:

  • Prescriptions issued on or before 31/12/2024 (Period 1)
  • Prescriptions issued between 01/01/2025 and 31/12/2025 (Period 2)

This process should be applied independently for each of these two periods.

Please note that patient‑level data should not be reported. Instead, patient‑level values should be aggregated to generate median values (and, where applicable, associated measures of dispersion) for the population of interest."

"Find below the information we are seeking:

  1. Total number of patients with Dravet syndrome per centre at period 1 and period 2."
Last updated: 20 May 2026