About this release

This release by Information Services Division (ISD) reports on the Scottish Government’s Local Delivery Plan (LDP) standard that all those newly diagnosed with dementia should receive a minimum of one year’s post-diagnostic support. The LDP standard is reported in two parts. The percentage of people estimated to be newly diagnosed with dementia who were referred for post-diagnostic support and, of those referred, the percentage who received a minimum of one year’s support. This report presents finalised figures for 2016/17 and provisional figures for 2017/18 which are subject to some service users completing their support.

Main points

  • There were 7,605 people diagnosed and referred for dementia post-diagnostic support in 2017/18, compared to 7,807 in 2016/17.
  • Of those referred in 2017/18 for post-diagnostic support, 72.5% received a minimum of one year’s support. In 2016/17, the percentage was 75.5%.
  • In 2017/18, those aged 80-84 years accounted for the largest percentage of people referred for post-diagnostic support (27.5%). This is similar in 2016/17 (26.9%).
Image caption Age distribution of referrals to dementia post-diagnostic support; 2017/18p
Bar Chart showing highest number of referrals among 80-84 yrs age group

ᴾ Figures for 2017/18 are provisional subject to all service users completing their support.

  • In Scotland, 42.3% of those people estimated to be newly diagnosed with dementia in 2017/18 were referred for post-diagnostic support, compared to 44.6% in 2016/17.

Background

The Scottish Government published their third national dementia strategy (external website) in 2017. This included the commitment to extend and embed dementia post-diagnostic support. In order to effectively monitor the delivery of post-diagnostic support a national local delivery plan (LDP) standard (external website) was introduced for all those newly diagnosed with dementia to receive a minimum of one year’s post-diagnostic support.

NHS Boards provide quarterly data submissions to ISD on individuals diagnosed and referred for post-diagnostic support within their local areas and this dataset forms the basis of the LDP standard calculation.

Revised data definitions (external website) and reporting processes were effective from 1 April 2019 and designed in consultation with stakeholders to improve the quality and consistency of the data reported. The Scotland level error rate for both 2016/17 and 2017/18 is around 3%.

Information presented in this publication is not comparable to previously published information relating to the dementia post-diagnostic support LDP standard. This is due to a combination of the change in definitions, improvements to data quality and refinements to the method used to calculate the standard which are detailed in the main publication report.

Part of the LDP standard calculation requires the number of referrals for post-diagnostic support to be compared against an estimated number of newly diagnosed dementia cases each year. Health Board level estimates of people newly diagnosed with dementia (incidence) used for this calculation are from the Scottish Government paper 'Estimated and Projected Diagnosis Rates for Dementia in Scotland 2014-2020' (external website)  published in 2016.

Further information

For further information, please see the Dementia Post-Diagnostic Support (external website) web page.

For information on the Dementia Benchmarking toolkit, please see the Dementia Bookmarking toolkit publication. For related topics, please see the mental health (external website) and health and social community care (external website) web pages.

The next release of this publication will be March 2021.

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Older versions of this publication

Versions of this publication released before 16 March 2020 may be found on the Data and Intelligence, Health Protection Scotland or Improving Health websites.

Last updated: 21 March 2024
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